No need to be anybody but oneself. (only_more_love) wrote,
No need to be anybody but oneself.
only_more_love

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hi

I haven't been online much this month. Life's kept on happening, and I haven't stopped watching TV (though I am behind on several shows), but I haven't wanted to write or post much. And fandom hasn't felt remotely interesting; that's not a judgment of fandom, though. I guess I've taken an unintentional hiatus.

In 2009 or 2010, I mentioned that a friend of my husband's from college had a brain tumor. He fought, but a few weeks ago he lost. His last weeks were spent in a coma or locked-in syndrome. They're not sure which. He left behind 2 young daughters, a wife, a brother, parents, and many friends.

This past summer, an old friend of mine who lives another state had her first child. He was in the NICU for a while with feeding problems. What I didn't know until recently is that he was unexpectedly born with a genetic disorder called Zellweger Syndrome  . There's no cure; most kids who have it die within 6 months or a year. He has a feeding tube, a tracheostomy tube, he has seizures, and he's had two bouts of pneumonia. His doctors keep trying to convince my friend and her husband to put him in a chronic care facility so they can "get on with their lives." Instead, my friend has quit her job and is at home with her son. They take it moment by moment, but chances are he will die very young.

M. turned two on March 3rd. My baby is no longer a baby. I cannot begin to fathom how much pain my friend and her family are experiencing as they fall in love with their little boy and know that he is very, very ill. There is nothing I can do, but it weighs on me. I don't believe in God, and I don't see the purpose of these kinds of events/circumstances. I do believe that some face with them a lot of grace, but I don't see them as part of a grand plan.

We've been doing playdates, little classes, etc. Staying busy isn't a problem with a toddler. M. will start preschool part-time in the fall. I'm not sure I'm ready for it, but I hope it will be good for her.

I'm on Season 2 of Fringe and enjoying the hell out of that show. I'm behind on The Good Wife and The Chicago Code, but both are stellar. Friday Night Lights is over, and I am fulfilled but sad, too. It's a shame they didn't get 22-ep seasons. I'm caught up on Bones, but the B/B stuff hasn't felt important to me. Maybe that'll change; maybe it won't. The stuff with Angela, Jack, and their unborn baby has hit close to home, though. More on TV later, if I feel like it.

Life stops for no one but the dead, I know, so I'm sure I've missed a lot in your lives this month. If you'd like, give me an update.
Tags: personal
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